Hi, I’m 32 years old and my name is Jo. I’m from Glasglow, Scotland.

My Family’s History With Migraines

I started getting migraines (visual) at 16. I would usually experience visual disturbances then severe sensitivity to light. They usually occur twice a month and would only last a few days. There is no known history of migraines, only hypothyroidism and cardiac/respiratory defects.  

Sadly now, over the past 2 years these have grown worse, my migraines have changed so I’m sensitive to noise, temperature, light and movement. I have poor coordination and cognitive functionality. Some days I need a walking stick to keep me stable. Some days I can’t talk. I’ve been off work close to a year now and friends don’t care.

The People Around Me

I no longer have friends, they have alienated me. Thankfully my parents and partner and his family members are all understanding. 

The Effect of Migraines On My Life

I’ve not held a hob in over a year, I can’t go out much, and when I do, it can’t be for long as the migraines will get worse. I hardly get to socialise since no one around me is willing to understand what I’m going through.

What I’ve Tried 

I’ve tried several non-medical and medical treatments. Topiramate caused paralysis on the right side of my body and amitriptyline caused serotonin syndrome. Venlafaxine offered little help. Naratriptan causes such horrid sweats and tries me out to no end. On days things get really unbearable I just cry uncontrollably as the pain and the disablement is so bad. 

Some Advice for My Fellow Migraineurs 

Once you’re at rock bottom, only then will it start to get better. Be prepared for a long journey. Keep pushing your doctor. If you don’t, they might not help. It’s best to have someone who knows your worse days and goes with you to appointments when you can’t cope.